Sad Announcement about Michael

This is Michael's mother writing. I am sorry to write the sad news that Michael passed away early yesterday morning. During the last twelve months, Michael had endured seven hospital stays, each with prolonged home antibiotic IV treatment; he had come home two weeks ago on Hospice Care. He had bravely endured 23 years of Cystic Fibrosis.

Many thanks to YOU, his loyal audience, for being the receivers of his upbeat and endearing daily musings.

Today

I want to say that today I am glad to be awake because I had a rough night. My oxygen keeps being too low and that makes me sleep. I'm really scared about that. I heard that my oxygen got so low and I'm really concerned about that. I think that it might need tobe changed.I'm going to talk to the nurse about that when she comes.She's coming soon. Also I have to say that Ihad a good visit with a friend Lisa. I'm trying not to have too many visits to not wear myself out. But you need some company. I hope that's ok with everyone. It's also because my mom isn't getting out as much so she needs friends to see so she can get a chance to talk with her when I was getting my medicines with the nurse. And I just want to say that sometimes it's harder to come up with a lot of stuff on here. and i think todays one of those days



I dreamed about my grandfather Carter last night.I don't want him to worry.I'm not that sick yet where you need to come down.I know you care so much and I think of you all the time.

I just feel like I need to add some sports to this because I haven't mentioned any in a while. I was going to write a sports blog but it wasn't coming to me today because I haven't been keepign up with the gmaes because the medicnine is making me to sleepy to keep watching the games. I'll see the beginnings of the games and the first games and I won't remenber. So I won't really remember what goes on with the game. It's kind of comfortable to watch it like that but I do enjoy watching it regular way. I have been getting watching ball because Ineed to watch some sports.

Tired

After Bohami, I haven't had that much energy. It took a lot more out of me than I thought it would. It kind of reminded me that I'm still sick when Ihave been looking good. everybody had been telling me how good I looked and I probably still look good in the face but I'm pretty sick on the inside. Twice yesterday my oxygen dropped down to the 50s. I couldn't take a breath in and my fingernails turned blue. My feel were purple. The nurse says that's bad. They gave me a lot of medicine that brought me back and if you were just looking at me I look the same but I am on a lot of medicine. And I need to rest. That's the main thing. I think I can recovery from this easily but I need to rest. I can't talk too much. That's hard for me because I want to talk a lot and get involved in stuff. I've enjoyed the last year with the cochlear implant so much because it's really showed me the part of life that I love which is interacting with people. Bohami was the symbolism of what I've loved in my life. I don't feel bad though with all this going on in my life. I just want to do what the doctors can do to help me and I want to listen to them. It would be a lot worse without the cochlear implant because I would be having to keep asking my mom what was going on and I would kind of stress her out because I depended on her so much. I need her a lot now but not nearly as much as then. I always loved that I had her.

I'm glad I had a chance to have Bohami outside because I don't think that I will get to go outside much anymore. Which is ok. I don't plan on it anyway.

Since I haven't done much the last three days I watched a movie with Geneva on the Blu Ray. The picture was really good but I couldn't keep up with the whole thing because I got too sleepy. It's just fun to be with Geneva because I feel so close to her right now like she is a family member.

Bohami Part 2

BOHAMI PART 2

More about Bohami: The girls brought over food and beer. I don’t drink beer so that they were just drinking it themselves (it’s a medicine thing). Caroline brought Hawaiian Punch for me, so I could have something. It might have been the best Hawaiian Punch I’ve ever had since it was so cold. The girls brought over Hawaiian shirts which made this party a true party and it was better than anything I had had in mind because girls are just better at this kind of stuff than guys. And seeing girls in bikinis wouldn’t have any better than this. It was fun. We talked about stuff, we ate sandwiches and we had lots of laughter and enjoyed the weather. We started singing each other’s name and I took off my shirt and started singing about Caroline W and Hallie A. That made the girls laugh.

My mom’s friend Mary came over and made cheese dip and it was the best I have ever had. For parties like this mary knows how to do it.
It meant a lot to me that these girls would do all this and bring decorations. During the party I thought what nice friends I have that I could have a beach picnic with pretty girls. My brother has repeatedly told me this: that I am a nice person and a lucky person to have such nice friends. I feel like the luckiest person in the world to have friends like that.

Summary for this is that having nice friends is priceless because they will do great things for you and when the pictures came up on facebook, all these other people said they wanted to be invited to my future parties, which made me feel great. When I heard from one person in particular who wanted to come to my party it made me feel happy that I could still be in the social world even in my own house. I can still feel where people wanted to come see me and like where I was among people my own age, without seemingly trying to get attention.
My friends did a great job and I really want to thank them.

Bohami

BOHAMI
ME AND CAROLINE

MORE PICS IN THE DAYS AHEAD (FIND OUT AT THE END)

Bohami-
,
background- I had been wanting to take a trip for over a year As I’VE written before, With my brother having his own money to go on trips and also being on his own, and Tricia getting to travel around the world, I felt a bit left out, Like anyone would. Well I had been waiting a long time and we were about to get to me and before we got an idea we had our evacuation to Atlanta for a hurricane that didn’t hit. I was disappointed but Atlanta was fun. My parents promised a future trip around this time of year. But I can’t really travel for the moment now. I had wanted to go to a beach trip That never happened since Atlanta was such a short time ago. I explained all this to My friends Marissa and Hallie. Hallie instantly came up with the idea of bringing the beach to me in my backyard with Marissa calling it Bohami to have the ami part like Miami. Since it was going to be the most beautiful place on earth and plenty of pretty girls (great thoughts when your in the hospital not feeling good then) So I looked forward to Bohami through two Hospital stays. When Caroline heard about the party while visiting in the Hospital she wanted to come, it changed from just sitting in the sun, to having it be a beach picnic party where they brought over food and made decorations. I’ll list some in my first bohami blog tomorrow. That was supposed to be my surprise. All though the party was awesome it reminded me of my health state. For the last two days I’ve been wanting to write about it, but I felt so tired and the medicines made it hard to concentrate. and I just needed to stop for now and just write pieces , Bohami. I Had planned to write a full description with lots of pictures .which will be out tomorrow. All of the pictures are already on my FAcebook. The rest will be on my blog this week and on my blog photo album on blogger.
I’m really glad we did it when we did because the nurse said that I really shouldn’t be outside now because of the heat so I’m glad we got to experience that one time thrill, but I do have to remember that there is a reason why I’m not in the best shape. The bohami blog will be out tomomorrow or when my health is feeling not so sleepy or coughing so badly.that was my problem today. I tried from 7 am to 7:00 pm before giving it to my mom to finish.

contributors to bohami- caroline,marissa, mary c, ann boh, Robert boh, tricia boh, Michaelboh, hallie a

small update

hey i'm really tired tonight and off tonight. i had half a blog typed up befefore got screwed up. well tomorrow i will send out the surprise. i think today showed me that even though most days i feel perfectly well, i'm not and I need to not push myself to hard. now I don't want to just be inside every day so what we did yesterday uses up energy compared to others. i'll get back to you. I took 50 pictures

sunday update

Well it's sunday. I usually find sunday the hardest day of th week to write blogs on so i'm going to give myself a breal and go have some fun today. the Health is good and I'm getting enough hours of sleep and and not waking up my mom in the room. That's good. Tomorrow will blog to look forward to, I can tell you that. That's all I can you I want to keep it a surprise

sue

Hey everyone. I've been watching a lot of college basketball. I Got a very nice gift from an old friend of mine from back at the st. Georgia's year's Sue . You know she was my favorite teacher from back then and I feel she connected with me the most. I liked Rob for giving me a place to go, but he and I didn't see each other much unless I was really in trouble. Except for the 1 time he came over to watch the red wings, that was fun. But Sue could really help me out in a way where other teachers didn't because I think she knew what it was lise raising kids mine, or similar ages. Plus she is just such a sweet person. She would tell me how I could handle things a certain way and knew how to say it where I would take it in right. I remember she always had all sorts of ideas to help me like keep charts on did Michael have a good day or a bad day and she would keep my mom in formed so my doctors would know. that's pretty good info for when we when to go to go to the doctor.

Anyway, the gift was xbox live points when I can't tell you how much I appreciate. I download stuff off the xbox live market place at least once a week and it wil be great not to have to charge my parents.

She also got me a book about World War two. I really want to thank you Sue for listening to my interest when I mention military history. I've always felt that even though I didn't go to college I could educate myself just by reading some about it. I always enjoy reading about the D Day conflict. Different authors have a different view on it but they can only agree on one thing: we kicked some NAZI ass and took back the free world once more. The nice thing I saw from quickly checking out this book was is there's lots of colored maps with overhead views of the beaches. I had never really seen that before in another World war 2 book. Usually the ones I read are just like regular books so this is really cool. It's really nice for a chang after reading the joree toree book through hospital stays.

so i want to give sue a huge thank you!!!! you've were a huge part of my life growing up and I'm glad you still think about me to do something this kind. You were my favorite teacher but I never really thought of as a teacher, I felt like like you were a friend teaching me advice in life and how to learn things to live by.

You all know how much I like reading, the two regret thoughts I had in the Hospital and I've shared the first about street fighter iv but I Forgot to mention that I never thought I would be alive to finish my Joe Toee book. Now the only other not being alive challenge that my friend Chris, my fantasy football team mate, in his his then 16 year old innocence said "you'll probably be dead before you finish" (the net fix list) haha. don't worry i find that funny.

I got a new bathing suit that I think really looks cool It's a good fit and color. I plan on getting out soon and getting some sun. I can go out our back window in my room and pull up a chair and drink coke or pine apple juice, Gatorade or whatever else. I can't go swimming anymore but we are going to use that area more. Soon in fact.

CHARLES BARKLEY

Right now my score in the NCAA Tournament challenge on espn.com is 130. My dad's picks are 100. So me watching all those games this year is helping to pay off. I'm afraid for LSU's chances in the next round but will of course be cheering them them on. What an upset it would be. The thing is, being an LSU fan, beating North Carolina isn't something that is no way going to happen like it would when I cheered for Tulane. So we have to see. I'm not going to write to long of a blong today because the tv needs me, haha. just kidding. I've found as fun as fun as it is to watch the games you can't watch them all. Oh And I practiced a little Street fighter 4, I've just totally lost my skill from before the 2nd hospital stay. What I did then that made me so good was I wasn't overly agressive, I knew how to play offensively and switch over to defense to keep from getting killed. It takes time to get back to where you want to be.



Taking showers has been something that is really difficult since getting my oxygen mask on and having me moved here. This was a little embarrassing at first but I had to get used to it- my mom helps me, you know after a while it's not it's not a big deal and I rather that then a stranger. I hope that don't sound disturbing. Sometimes the oxygen drops while I'm in there there because I get nervous or I forget to breath in and out, or I sit in there to long. But I am getting better. the last time I got out of the shower my oxygen was 84, which while not the best is much better then when I would get out, totally breathless in the 70's. Oh and I do all the soap by self of course. she's not really touching me except for my hair. It's great to be able to wash your hair because while in the hospital I could only use dry shampoo which can't be as good. our set up in the shower is a chair for me to sit on and my mom sprays me with a hose while i clean myself with soap. I've been wondering if I should share this but I decided it's nothing to ashamed of,



My mom's getting me a bathing suit. Now that I have no IV's in me for the first time in forever, I decided I wanted to sit by the pool a lot now to get some sun. I don't want to look pail. And my old bathing suit didn't come close to fittiing because I've lost so much weight. It was when I was like size 40. Now I am slim and looking fit. I don't have the belly I used to.

Something I would suggest everyone to watch is the hank Haney experiment with Charles Barkley. It’s on the Golf Channel. They have aired 3 episodes so far but there’s repeats on nightly so if you record them you can catch up soon. It’s about Hank Haney, who is Tiger Wood’s swing guru (I think think that’s the word he uses, not coach) is trying to finish Charles Barkley’s swing. Charles Has the worst swing of anyone alive. So they are trying to get him in better shape (he’s 80 pounds higher then when he played 10 years ago). Charles is one of the funniest guy around and he says some crazy stuff. You get the feeling that this show half nike showing off all there new gear because Charles tries on a bunch of cool stuff. It’s hilarious on the show how he will yell out words like “OH ****” when he misses a swing completely. Anyway I would check it out. I don’t want to give it all away.

I FINISHED THE JOE TOREE BOOK!! I WON'T TALK ABOUT IT AGAIN!! OVERALL RATING- C+

lemon cake

Hey everyone. I’m doing good today. Another day like yesterday so far of getting up early and getting stuff I like to do in the morning done like listen to music and read .
I’m still on the Joe Toree book but I must be nearing the end as it’s about the 2007 version of the team. I’ve decided while I found that to have some interesting stuff in it, was written in a way that made it to long and it was were everything toree did was right and he never made a bad call.

By the way I pre-ordered a book from amazon.com about George Steinbrenner. It comes out in late april, I’ve always wanted to know more about “THE BOSS” so It will be good I hope. I Miss him running the team and I think it’s really going to hurt them because he could keep things in order for the Yankees before his health got to the bad state it’s in now where he’s gave control of the team to his sons. The Boss wouldn’t accept the Yankees not making the playoffs and being a yankee fan, I think I would like there odds more this year If he was still in control at his best*

*- WRITTEN BEFORE I remembered they got C.C. Sabathia and Tex among others. Still not sure if they have enough pitching. It is much better then the last few years but wang has to keep it from getting his chopped off (ok real immature 12 year old humor.) He needs to stay healthy and that hasn't been the case in the past. I'm not so worried now. I like that team. I think Burnett is the kind of pitcher they need.

Me and my dad are going to watch Mama mia! On blu ray tonight with my mom and sister. It’s fair enough since they get hardly any TV time. My mom gets my dad about 3 times a year to watch movies like this. He usually has a good time. I’ve seen it in theatres twice actually (READ some of the summer blogs) it has good singing but it’s def not a guy movie. It was a little painful to see pierre bronsan who I will always think of as 007 James Bond Goldeneye mainly from the awesome Nintendo 64 game (the movie was bad somewhat), be singing in a musical with a bunch of girls and to be dancing around, which is totally not James Bond like. I guess I never liked anything else he did because the first bond movie I saw was goldeneye so I always thought of him as James Bond and he hasn’t really changed his looks through the years so it’s hard to think of him as a different character in another movie

My uncle brought me back Disney chocholate’s and a mickey mouse watch. I love getting watches from him, he got me a sugar bowl watch for the sugar and now a mickey one so I might have to start a collection. It’s a nice watch actually. He goes to Disney world with my two cousins about every year. That sounds really fun, I’d go for that. I think they have a lot of stuff besides kids stuff. He was telling about seeing ESPN people there. I think it was ESPN sports week so they had like sportscenter there. I remember watching. Also the Braves games are there, not sure if he went. I really wish I had gotten another chance to go there besides when I went when I was like 6 and 7. I love rides. But I don’t really regret it of course. Video games for xbox 360 are just as fun if not better.


I really want to thank the nice people who work in the oak room at the nocc who brought me all of my favorite cakes from the club. I hope I worded that right, I’m trying to include everyone out there because I know they were all thinking of me and I really miss going out there. But I will be going back out will I get settled at home and we learn how to use portable oxygen. That will be among the first places we go. The cakes taste so good. So far I’ve had to two lemon cakes. I’m sharing them with everyone though there’s so much. I want to thank bobby for bringing to our house. That was really nice of him.
Michael Boh
I HOPE this wasn't to long. I didn't realize the length when I wrote it.